A huge thank you from Devon Air Ambulance Plus Details of DASLS Immediate Past President Sue Aggett's Walk in support of the President's Charities

Your year of support for Devon Air Ambulance is ending soon,

so we want to say a huge thank you for all that you have done and show you what a difference you have made, by sharing the story of one of our younger patients with you.

Five-year-old Paige lives with a rare condition, Dravet Syndrome, which means she regularly experiences life-threatening seizures requiring swift medical intervention. It also causes many other issues such as developmental delays, speech and balance issues and increased risk of sudden unexpected death in epilepsy (SUDEP).


Because of this, her family and teachers must always be alert to her condition as seizures can strike without warning and, when they do, require urgent medical care to ensure her airway remains open. 


In early December 2018, when many school children are counting down the days to Christmas, young Paige had another seizure that brought back harrowing memories for her mother Sam.

 

Here is her account:


"It brought back so many flashbacks and terrifying memories. Paige had a seizure at school, which quite quickly turned bad when she stopped breathing and needed help with her airway. Two incredible teachers kept her airway open and ventilated her with a bag and mask and oxygen until the Air Ambulance could land and take over.

 

I never know which way these seizures will go and how much damage the lack of oxygen will do to her brain. I worry that every seizure could be the one that takes her life. Luckily the seizure stopped, and I convinced the crews to let me take her home.


It was five years ago that our lives changed forever, and I remember every detail: who was there and what I was doing, the smells, the voices, the beeping of machines... I remember feeling like I was being suffocated. The room was spinning, and I felt my whole world being ripped apart in front of my eyes.


I watched helplessly as a huge team of doctors and nurses battled for hours to save my little Paige: performing CPR and putting tubes down her throat to keep her airway open, drilling into her bone marrow to inject live-saving drugs as her veins were collapsing, then being pulled into a side room to be told she was critical and that the doctors were doing the best they could to save her.


Those words, that night and those events play over and over in my head. I will never get over the trauma or the thought of not taking my baby home for Christmas that year.

 

I treasure every day I spend with this warrior. I look back at what we have been through over these five years and how we manage to deal with these episodes every few weeks. Although the future is uncertain, and we don't know how long we have left with her, I am so proud to be her mum and I will continue to fight for her with every ounce of strength in my body."

 

 devon-air-ambulance-paige-graphic-3 

PRESIDENT’S CHARITIES

 

sue-aggetts-walk-spring-2019 DASLS Immediate Past President Sue Aggett is walking 210 miles (a third) of the South West Coast Path by the April AGM in support of the Devon Air Ambulance and the Dorset & Somerset Air Ambulance.  She says:

 

“I’m hoping I have successfully convinced my husband, Neil, to walk with me but would very much welcome any guest walkers to join me in any stage of this challenge.  I will keep you updated of forthcoming walks through DASLS Twitter and Buzz.”  Both Air Ambulance services  rely entirely on the generosity of communities, businesses and friends of their respective counties and your support really does help to save lives.  If you would like to support Sue by making a donation you can do so online at https://mydonate.bt.com/fundraisers/sueaggett1

 

 

 

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